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Carol Sadler: The Difference is in the Details (Spectrum Overlap)
Led By: Madelyn Griffith-Haynie
Starts: 03/17/2005 at 8:00 pm
Schedule: Thursday, March 17 at 8:00 pm 1 Session, for 1 Hour
Tuition: Free
About this program:
The ADD Expert Speakers Series
one of OFI's ADD Hours™
brought to you by
Madelyn Griffith-Haynie, MCC and The Optimal Functioning Institute™
through the generosity of our Speakers -- who volunteer their expertise for the benefit of all.
March topic: The Difference is in the Details
ABOUT the speaker:
A former CHADD & LDA Coordinator,
Carol Sadler is a special educational advocate, coach as well as therapist for many of her clients. The foundation for her extensive knowledge base came from seven years of investigative efforts to help her own children. With personal experience with ADHD & OCD, she stays current with ADHD, comorbid disabilities as well as advocacy issues through her work as a professional advocate and consulting with a special education attorney.
She currently moderates five ADD listservs - which she founded - offering e-mail support for individuals looking for help and information, each serving specific segments of a similar population.
As a result of ongoing research and experience in the field, she is adept at screening her clients and figuring out what's "wrong" with them, which is critical in getting them both the medical and educational help they need.
ABOUT the Focus of the Hour:
Carol Sadler believes that no professional can truly offer help to a child or adult with disabilities until they know exactly what they are dealing with. OFI observes that we rarely find much of anything we don't know to look for and that, without a fairly good "picture" to compare with what we do find, it is highly likely that we will misunderstand or misidentify what jumps out at us.
So what might that include for those of us who work professionally with ADDers?
According to the NIH study, 69% of the individuals with ADD have at least one comorbid disorder . . . so that statistic indicates that two thirds of the population we serve exhibits additional co-existing symptoms, syndromes or conditions in combination with their presenting diagnosis -- in statistically significant numbers greater than we find in the general population.
Which ALSO means fewer than one third of the ADDers we work with have ADD in isolation.
Are we looking for what we need to find in the remaining two thirds?
Even more important, do we know what to do with what we find?
Some other statistics put forth about ADD comorbidities include:
mood disorders (15-20%)
anxiety disorders (20-25%)
oppositional defiant disorder (up to 40%)
conduct disorder (15-20%)
learning disabilities (15-25%)
language disorders (30-35%)
and the anecdotal report that up to 75% of ADDers have comorbid sleep disorders.
When the presenting diagnosis is something other than ADD, it gets more complicated still. Up to 60% percent of children with tic disorders also have ADD, for example.
More recently, we have begun to identify a growing number of ADD/Aspergers overlaps, and a diagnosis that still puzzles many of us: ADD/PDDNOS -- Pervasive Developmental Disorders Not Otherwise Specified.
What's Going ON?
The association between comorbid disorders may reflect an underlying vulnerability to "related" disorders, a causal relationship between one disorder and another, or may turn out to be unrelated to any common etiology or vulnerability at all! As a field, we are still unsure of the reason for the overlaps, even as most of us understand and agree with the importance of looking for them.
Those of us who work with ADDers realize how common it is to find impairments in cognitive processing that are not "officially" part of the ADD Diagnosis as described in the DSM.
We have come to expect that part of our work with ADDers will include, to varying degrees and in various combinations, working with challenges of memory, sequencing, motor skills, social skills, modulation of emotional response and reactions to discipline, trouble with transitions and difficulties with time.
Apart from the corroborating studies, we have observed in our practices that overlapping diagnoses are frequently discovered in individuals clinically treated for ADD and, sadly,
almost as frequently overlooked.
How can we HELP?
As a field, the more we each understand the nuances and implications of attentional spectrum disorders, the better we become at helping those we work with learn to manage their lives successfully, turning their "disorder" into a "difference" that, ideally, can become a strength.
In order to help Adults and children with ADD effectively, all ADD professionals need to possess a general understanding of each of the co-morbid disorders and an excellent understanding of the ones exhibited by the individuals we work with.
At the same time, the scope of the task demands the development of resources within our communities so that we can refer our clients when appropriate or necessary.
If the difference IS in the details, we need to develop procedures that allow us to capture those details.
This month's expert speaker has volunteered to share expertise gained through her experience with Pervasive Developmental Disorders, as well as her favorite intake questions -- the "camera" she uses to take a clear picture that will guide her in developing effective strategies, regardless of the combination of details in the picture. She will also share resources from the Georgia Children's Network.
Won't you join us? And please, plan to stick around for the "Post Game Wrap-Up" hour immediately following to ask questions, talk about the implications, and share your experience and expertise with the rest of us.
It takes a village to educate a world!
MORE about Carol Sadler:
More than anything else, she considers herself the proud mom of two lovely AD/HD daughters, ages 10 and 13. It wasn't until her 2nd daughter was diagnosed with ADD - Inattentive Type that she realized she was "the gene spreader" -- AD/HD herself.
In order to better support her children, both at home and school, she became a CHADD volunteer and LDA Coordinator in Atlanta for almost 4 years, currently working in private practice as a Special Education Consultant/Advocate, supporting parents in school meetings designed to accommodate their children's disabilities. In addition to her work with a private special education attorney, she often volunteers with the GA Advocacy Office Attorneys, representing parents who cannot afford a private attorney/advocate.
As a result of the combination of her children's disabilities, her work with various organizations, extensive personal research, and her own "inside knowledge" of ADD, Ms. Sadler has developed considerable expertise with issues of mental health, neurological and developmental disabilities, advocacy, and special education laws.
She continues to be an outspoken advocate for people with AD/HD and co-morbid disabilities, with far-reaching effectiveness through her disability listservs, which allow her to share advocacy information and details about ADD and co-morbid disorders with individuals around the world.
Carol Sadler
Special Education Consultant/Advocate
Graduate of GA Advocacy Office - Parent Leadership Support Project I
1105 Rock Pointe Look
Woodstock, GA 30188
770-442-8357
carolsadler@bellsouth.net www.IEPAdvocate4You.com Disability listservs founded and moderated by Carol Sadler
http://groups.yahoo.com/group/GA-ADHDe-news/ http://groups.yahoo.com/group/GA-ADHDParentSupport/ http://groups.yahoo.com/group/GA-ADHDAdultSupport/ http://groups.yahoo.com/group/GA-AdvocatesNetwork/ http://groups.yahoo.com/group/GA-ChildrensNetwork/ [further listserv details upon registration]
Register from link at BOTTOM of page:
Before you click to submit your registration, take a moment to make SURE that the information in the fields of your registration form is correct and that you have included your:
name
mailing address and
telephone number
Double-check to make sure that your email address is complete (including the part after the @) so that you will be able to receive the automatic confirmation and reminder email that will contain the Bridge number and pin, along with additional information
Intended Audience: The ADD Expert Speakers Series is one of OFI's ADD Hours™
Designed for ADD Professionals -- support for the people who provide the support!
Anyone working with ADDers in a professional capacity is welcome to attend.
As an accommodation for ADD, we extend blanket permission for the taping of any of OFI's ADD Hours™. Consider the possibility that anything you say on a bridge call may be recorded.
Although OFI Policy is that all tapes are confidential and for personal use ONLY, we cannot guarantee that everyone will be respectful.
We require that anyone who joins our calls register their identity with OFI, which we CAN guarantee will remain private.(We promise not to share your information with anyone EVER!)
Speaker's Series tapes, when permitted by the speaker, are often an exception to the confidentiality rule and usually may be shared. Calls taped "officially" will be for available for replay in some instances.
Announcements of replay dates for taped versions will be posted as Late Breaking News on our homepage, with registration available from a link posted to the OFI calendar.
Leader's Instructions: ABOUT List servs moderated by Carol Sadler --
GA-ADHDe-news - An on-line e-mail newsletter used to disseminate AD/HD and co-morbid disorder information to contacts and interested parties. Types of notices sent: support group meeting notices, advocacy info, local disability organization info, local school news, research, articles, and support information. This is not a list serv or discussion group, you will only receive notices from the group owner, and you cannot respond back to the list.
To view the website, go to
http://groups.yahoo.com/groups/GA-ADHDe-news .
To join the e-newsletter group, send an e-mail to
GA-ADHDe-news-subscribe@yahoogroups.com GA-ADHDParentSupport -This AD/HD discussion list is open to parents with children with AD/HD, professionals and others with an interest in AD/HD and co-morbid disorders.
To view the website, go to
http://groups.yahoo.com/group/GA-ADHDParentSupport To join , send an e-mail to
GA-ADHDParentSupport-subscribe@yahoogroups.comGA-ADHDAdultSupport - This AD/HD discussion list is open to adults with AD/HD, professionals and others with an interest in Adult AD/HD and co-morbid disorders.
To view the website, go to
http://groups.yahoo.com/group/GA-ADHDAdultSupport To join , send an e-mail to
GA-ADHDAdultSupport-subscribe@yahoogroups.comGA Children's Network - The GA Children's Network is an exciting listserv in Georgia designed to provide much needed information and support for parents and grandparents of children with special needs. Parents, advocates, attorneys and professionals are members of this list and will offer support and sound advice. Any topic, view, feeling, or concern is open and welcome for discussion, including but not limited to Disability Info, BCW (Babies Can't Wait), SST (Student Support Team), Special Education &; Civil Rights (ADA, IDEA, &; 504), appropriate medical care, and other such issues. This support is provided in an unbiased, safe forum moderated by parents of children with special needs.
This list will also be used to disseminate info related to all types of disability and advocacy information. Types of notices sent: various support group meeting notices, disability and advocacy info, local/national disability organization info, research, and misc. articles. Dedicated to supporting and helping disabled children, this list is thus restricted and requires detailed introductions and members to sign a confidentiality statement for protection of the children, members, and moderators which will be e-mailed to you when you subscribe.
To view the website, go to
http://groups.yahoo.com/group/GA-ChildrensNetwork/ To subscribe, send an e-mail to:
GA-ChildrensNetwork-subscribe@yahoo.com GA-AdvocatesNetwork – This is an exciting new list service designed to set up a State wide network of special needs Advocates in GA to disseminate information to each other and to discuss advocacy matters. We welcome parents and grandparents, advocates, professional advocates, non-profit agency advocates, educators and state department advocates.
To view the website, go to
http://groups.yahoo.com/group/GA-AdvocatesNetwork To join, send an e-mail
toGA-AdvocatesNetwork-subscribe@yahoo.com Register for this Event
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